Ron Hayes didn't get a diagnosis of type 1 myotonic dystrophy (MMD1 or DM1) until he was 54, long after he had enjoyed academic and athletic success in high school and college, had earned a master's degree in public health, had married and had children, and had established himself in a career.
My mind, body and spirit become connected while dancing in my wheelchair
Sixteen years ago, I learned I have limb-girdle muscular dystrophy (LGMD).
My doctor explained that LGMD would take away my freedom to perform everyday functions such as walking, climbing, sitting, dancing and playing sports, and that it would eventually lead to extreme muscle wasting, daily pain and the need to use a wheelchair.
A psychologist who ran MDA parent support groups offers guidance on ways to handle misbehavior
The most important element of disciplining a child is to have your anger under control when doing the disciplining. When your anger is under control, you earn respect from your child, the discipline will be effective, and you are modeling how children can handle their own anger in a healthy manner.
Your anger is under control when:
A genetic counseling student is exploring the role of family functioning in promoting the adaptation of siblings of children with DMD
Belen Pappa, a graduate student in genetic counseling, is seeking participants for a survey-based study about psychosocial functioning in families in which a child has Duchenne muscular dystrophy (DMD).
Researchers at the University of Michigan are studying why some people identify themselves as disabled and others do not
Researchers at the Psychology of Disability Lab at the University of Michigan in Ann Arbor are exploring the social identity of people with disabilities through a short, anonymous, Web-based questionnaire.
The lab's Disability Identity Project is being headed by principal investigator Adena Rottenstein, a doctoral candidate in psychology.
The study closes the week of Aug. 22, 2011.
Can love, courage and modern medical technology prevent muscular dystrophy from being passed on to the next generation?
It was the worst Monday morning of our lives — and Mondays are universally bad.
My wife, Monique, and I woke up to a snow lockdown in London. The snow had started gently enough in the evening, but now on this January morning it was a white strait jacket. We could hardly move, but we desperately needed to get to Nottingham at all costs. Our potential future children — two fertilized and rapidly...
Researchers are surveying people with a congenital form of muscular dystrophy or myopathy about their perceptions of their quality of life and autonomy
Researchers at the University of Michigan are seeking 30 young adults, ages 18-29, who have had symptoms of certain forms of muscular dystrophy or myopathy since birth, to complete an online survey that asks about their perceived quality of life and level of independence.
The study also is recruiting 30 adults with no neuromuscular disease.
Results will be used to identify ways that counselors...