My crutches were a source of anxiety about not looking ‘normal,’ until I learned to let go by just holding on to them
When I fell several months ago and couldn’t get up under my own power, I knew it was time to let go. Or rather, time to finally grab a hold.
For the first 26 years of my life, I could walk on my own with confidence. But on that day, as I propped myself up using the bumper of a car and a mailbox, I realized that was no longer the case.
Without the help of my paid caregivers, I can’t get out of bed. I put my life in their hands every day, and that’s why it was such a slap in the face when one of my aides stole my work laptop.
It’s been well-documented that individuals with disabilities are victimized by crime, including burglary/theft, at much higher rates than the rest of the population. In fact, we’re often targeted...
The author’s weight loss surgery led her to start an exercise program that provided her with more muscle tone — and a lot of fun
To exercise or not to exercise? I can almost hear the people reading this article screaming, “NOT!” Truthfully, until about a year ago, I would have been screaming NOT the loudest, the longest and with absolutely no hesitation.
Author Danise Armstrong riding her tricycle.
Living with CMT
Becca Niebrugge runs to honor her uncle, who fought a brave battle against ALS
Becca Niebrugge has long been inspired by her uncle Mike Mitchell, who, like Becca’s dad, was an avid long-distance runner. But it was the painful experience of watching ALS (amyotrophic lateral sclerosis) abruptly strip her uncle of his ability to run, before ultimately claiming his life in April 2013, that finally compelled Becca to tackle a full marathon herself.
Two couples affected by Becker muscular dystrophy discuss the challenges and joys of making a relationship work when one partner has a chronic disease
After nine years of courtship, my partner Richard and I are discussing The Future. Children, marriage and home ownership are now notching out deeper spaces in our daily dialogue.
Like many couples, we’re both scared of The Future. We’re concerned we won’t be fully equipped for what may come — those ripples that may make life a little more difficult. We’ve already experienced hardships that we’ve...
Growing up, Morrow, who has spinal muscular atrophy, had to fight to get people to listen to him; now they pay thousands of dollars for the privilege
Self-confessed workaholic Jon Morrow is an entrepreneur and the CEO of BoostBlogTraffic.com — a company that grossed nearly half a million dollars last year and is expected to double that amount this year.
Thirty-year-old Morrow has always been a smart overachiever, graduating from high school at 16, starting three businesses before he was 18 (two game-development companies and a software company...
A family caregiver struggles to accept what is — and what will never be no matter how hard she wills it
Mom (top, 2011) climbed to the top of a White Sands, N.M., dune with me just two years before her muscles were too weak to support her own breath.