Growing up, Morrow, who has spinal muscular atrophy, had to fight to get people to listen to him; now they pay thousands of dollars for the privilege
Self-confessed workaholic Jon Morrow is an entrepreneur and the CEO of BoostBlogTraffic.com — a company that grossed nearly half a million dollars last year and is expected to double that amount this year.
Thirty-year-old Morrow has always been a smart overachiever, graduating from high school at 16, starting three businesses before he was 18 (two game-development companies and a software company...
A family caregiver struggles to accept what is — and what will never be no matter how hard she wills it
Mom (top, 2011) climbed to the top of a White Sands, N.M., dune with me just two years before her muscles were too weak to support her own breath.
Receiving care without giving back can be difficult. Feeling the love makes it easier.
For the entire day today, and perhaps throughout the weekend or longer if I can subdue my natural (or is it learned) character, I vow that I will accept all of the kindness, generosity, love and care given to me on this day and every day forward without guilt or a feeling of obligation.
In kindergarten, Mo Gerhardt played tee ball and soccer, and while his hand-eye coordination was excellent, his strength wasn’t.
Matthew (“Mo”) Gerhardt of Bath, Mich., will be 36 years old this fall.
Nathan enjoys going to the beach, an activity that's been made easier by an all-terrain vehicle chair.
When Nathan Jenkins of Greenville, S.C., was born in November 2003, he was “monstrously tall,” says his mother, Lisa.
Although it was difficult in the beginning, Carol Abraham says she doesn't give wearing her braces a second thought anymore.
Carol Abraham, 52, of Twin Lakes, Wis., is a retired occupational therapist who enjoys doing crafts and teaching at her church.
People from MDA's SMA community share their experiences in an effort to raise awareness of the disease and its effects
The experiences of people with spinal muscular atrophy (SMA) teach and help raise awareness about the disease, and are inspiring — and often entertaining — as well.
For a wealth of personal stories, anecdotes and perspectives about transitioning to adulthood with a muscle disease, check out the MDA Transitions Center blogs penned by members of MDA's SMA community: