Personal Stories

Balancing parenthood and neuromuscular disease is not just possible — many dedicated moms and dads who live that reality every day say having kids is the best decision they've ever made

posted on July 7, 2014 - 9:23am
Matthew Martin and Amanda Hall have more than a few things in common. They’re roughly the same age — Martin is 28; Hall is 30. They both call the state of Texas home — Martin in Rowlett; Hall in Glenrose. Then there’s the fact that each lives with a neuromuscular disease — Martin was diagnosed with Duchenne muscular dystrophy (DMD) at the age of 8; Hall with congenital myopathy in her early 20s.

Five tips for dealing with the diagnosis of a late-onset muscle disease

posted on July 7, 2014 - 9:17am
Quest Summer 2014
Each form of muscular dystrophy is devastating in its own way. For some patients, symptoms may manifest at birth or at a young age. My situation was different.

Meet clinical psychologist and disability advocate Danielle Sheypuk

posted on July 7, 2014 - 9:12am
Quest Summer 2014
Danielle Sheypuk, Ph.D., doesn’t just talk about the idea that people with disabilities can have robust and fulfilling romantic lives — she lives it, too.

Feedback from Quest readers and the MDA community

posted on July 7, 2014 - 9:05am
Quest Summer 2014
Take Our Survey and Tell Us What You Think

Refusing to be defined by his ALS, former NFL player Steve Gleason lives a life rich with purpose

posted on April 1, 2014 - 9:29am
Quest Spring 2014
In his eight-year NFL career as a safety and special teams standout for the New Orleans Saints, Steve Gleason never had the opportunity to play in a Super Bowl. Though Gleason’s not the type to live with regrets, watching his former team win it all in 2009 — just two years removed from his retirement — must have been bittersweet. But this year, during an otherwise lackluster game, Steve Gleason...

Living with diminishing physical ability means losing some independence, but it doesn’t have to mean less adventure

posted on April 1, 2014 - 9:25am
Quest Spring 2014
Kristal Hardin Independence. It is unique to the human experience. People fight for it. Toddlers to teens demand it. It is the way we live. So when a debilitating disease threatens to take away the thing we cherish the most — our independence — most of us channel our inner “Rocky” and refuse to go down without a fight. 

Meet Reagan Imhoff, MDA's 2014 National Goodwill Ambassador

posted on April 1, 2014 - 9:09am
Quest Spring 2014
Most people in the MDA community will recognize 8-year-old Reagan Imhoff right away from her unforgettable butterfly-themed dance performance at the 2012 MDA Show of Strength Telethon.

A strong support system makes it possible for one gifted student with Duchenne muscular dystrophy to pursue his dreams

posted on January 9, 2014 - 9:31am
Quest Winter 2014
Raymond Walter isn’t your typical teenager. Having graduated from high school at age 14 and from college at 18, he’s already knee-deep in his doctoral studies in mathematics and physics as a Distinguished Doctoral Fellow and a National Science Foundation Graduate Research Fellow at the University of Arkansas at age 19.