Personal Stories

For many young adults with neuromuscular disease, the challenges and rewards of college offer a steppingstone to greater independence

posted on July 14, 2015 - 3:23pm
“I was already signed up for Duke, and was wait-listed for Yale, but waiting for Harvard. When I opened the Harvard letter, I got the shock of my life, and that was it!” says 17-year-old Caroline Zheng on being accepted to her dream school, Harvard, where she’ll start classes in the fall.

Expert tips to help plan your next trip & travel smarter and safer

posted on July 14, 2015 - 3:21pm
Quest Summer 2015
Traveling can be scary, especially if you have a physical disability. In my own travels over the years, I’ve been trapped in a bathroom, dumped out of a car onto Fifth Avenue, toppled over in a moving bus, stranded in a subway tunnel and even showered with glass after accidentally shattering a revolving door. Despite its inherent challenges, though, traveling also can be an exciting and...

MDA families eager for research breakthroughs take active roles to accelerate therapy development and spread awareness of MDA's mission

posted on July 14, 2015 - 3:19pm
Quest Summer 2015
Children and adults living with neuromuscular diseases are not only awaiting progress in the search for treatments and cures; they are directly supporting and advancing that progress in real and significant ways.

A lifelong recipient of medical care finds her own calling and passion on the other side of the exam table 

posted on July 14, 2015 - 3:15pm
Quest Summer 2015
When I rolled into the hospital room, I looked around and saw monitors with blue and green lines and a red line that looked like something we typically see on TV medical shows. Is that a heartbeat? A sterile smell filled my nostrils. I saw machines and heard constant beeping. Nurses glided in and out of the room checking tubes and pressing buttons. But when I looked at the bed, it wasn’t me who...

Meet Ayden Watts and his team of 'wall crawlers'

posted on July 14, 2015 - 3:11pm
Quest Summer 2015
Six-year-old Ayden Watts, who was diagnosed with Becker muscular dystrophy at age 2, loves Spider-Man.

In this college-admissions essay, Harvard-bound Caroline Zheng shares how MDA summer camp gave her confidence

posted on July 14, 2015 - 3:07pm
Quest Summer 2015
"Scientists have been trying to find it for hundreds of years, pouring tons of money into research, and to this day they don't have a theory. The elements found in a human being is all junk that you can buy in any market with a child's allowance. Humans are pretty cheaply made," begins a passage from Hiromu Arakawa's Fullmetal Alchemist series. I learned this fact the hard way in...

News and updates from the MDA community

posted on July 14, 2015 - 3:05pm
Quest Summer 2015
Uniting Today for A Better Tomorrow: Building on the telethon’s rich history to achieve new ways to reach and connect families

MDA summer camp celebrates 60 years of awesome adventures for children with muscle disease

posted on April 21, 2015 - 9:23am
Quest Spring 2015
Ben Schussler loves to fish. So when he’s at MDA summer camp, he heads for the dock and casts his line as often as possible. “I catch two or three fish a day,” 8-year-old Ben boasts with glee in his little voice. Fishing is not a particularly unusual passion for a boy his age, although in Ben’s case, it isn’t something he thought he would — or could — ever enjoy.