Legislation and Policy

MDA families eager for research breakthroughs take active roles to accelerate therapy development and spread awareness of MDA's mission

posted on July 14, 2015 - 3:19pm
Children and adults living with neuromuscular diseases are not only awaiting progress in the search for treatments and cures; they are directly supporting and advancing that progress in real and significant ways.
posted on July 1, 2003 - 10:36am
Money — it's a big issue when you're coping with a neuromuscular disease. The search for funds to cover needed equipment, home modifications, drugs, treatments and other expenses, and the fight to get benefits from insurance companies and government agencies can be as stressful as the effects of the disease itself. In this issue, Quest attempts to provide a map of some of the traps, detours and...

'Today, we need help,' Lewis tells Senate committee

posted on May 31, 2001 - 5:00pm
MDA National Chairman Jerry Lewis laughs at a remark made by Benjamin Cumbo during a hearing before the U.S. Senate Subcommittee on Labor, Health and Human Services, Education and Related Agencies. Cumbo was MDA's National Goodwill Ambassador in 1996 and 1997.
posted on April 1, 2000 - 12:30pm
Pam Rhatigan remembers the day in 1981 when she and her husband, Brian, finished their genetic counseling sessions at the University of Arizona's medical center. They'd gone to discuss the chances that a baby they might conceive could be born with spinal muscular atrophy, a genetic disorder of muscle-controlling nerve cells that Pam was born with in 1953. There was no family history and little...