Legislation and Policy

MDA families eager for research breakthroughs take active roles to accelerate therapy development and spread awareness of MDA's mission

posted on July 14, 2015 - 3:19pm
Children and adults living with neuromuscular diseases are not only awaiting progress in the search for treatments and cures; they are directly supporting and advancing that progress in real and significant ways.
posted on July 1, 2009 - 3:30pm
QUEST Vol. 16, No. 3
The high number of recent property foreclosures, driven by an uncertain economy, is taking a particular toll on people with disabilities who rent homes, condos and apartments. People with disabilities often require ground-floor dwellings and close proximity to medical services, equipment providers, caregivers and accessible means of transportation. These requirements — plus difficulties with...
posted on July 1, 2009 - 2:34pm
QUEST Vol. 16, No. 3
Who doesn’t love recess? Remember those school days … you sat at your desk with your feet dangling from your chair, dreaming of the moment when the teacher would let you and your friends go to recess? Rain or shine, you got a well-deserved break from your daily routine, and you made the most of every second of it.

Writing off caregiver expenses

posted on January 1, 2009 - 2:49pm
QUEST Vol. 16, No. 1
For people who find themselves spending significant sums for the services of caregivers/personal care assistants (PCAs), the good news is that some of those expenses may be recouped. The three primary areas to check out in this regard are child and dependent care expenses; unreimbursed business/employment expenses related to disability; and medical and dental expenses. Medical and dental expenses

Tips to strengthen your case for coverage of power mobility devices

posted on November 1, 2008 - 10:24am
QUEST Vol. 15, No. 6
Getting insurance coverage for a power wheelchair shouldn’t be a struggle. But Medicare, Medicaid or private insurance denials are not uncommon, especially when high-tech features like tilt-and-recline, seat elevators, power leg lifts and standing features are added. But as the sports experts often say, a strong defense wins championships.
posted on September 1, 2008 - 10:17am
QUEST Vol. 15, No. 5
The Genetic Information Nondiscrimination Act (GINA) that was recently signed into law is an extremely significant piece of legislation for families affected by muscular dystrophy and other genetic conditions. To see why, here’s part of an e-mail exchange I had with a mother with a family history of Duchenne muscular dystrophy. Dear MDA,
posted on March 1, 2008 - 4:01pm
QUEST Vol. 15, No. 2
Find out more on parking violators, disability history, veterans, job opportunities, tech innovations and other resources.
posted on July 1, 2007 - 2:44pm
QUEST Vol. 14, No. 4
It started as an irritation and over the years evolved into a delicious ambition. How could I go about increasing accessibility in my community? Should I be the one to voice concerns? Would anyone listen? These were just some of the questions that echoed in my mind. The answers were soon to follow.