MDA is partnering with federal agencies and other groups serving youth with disabilities to break down barriers for young people transitioning from childhood to adulthood
Like many high school seniors, Drew is busy choosing a college and preparing for the big transition from life at home to life on a college campus. Unlike his peers, Drew has Duchenne muscular dystrophy.
Know your candidates' views on crucial issues, and use your power as an advocate and a voter
Did you know that people with disabilities are 10 percent less likely to be registered to vote, and 20 percent less likely to actually go to the polls and vote in an election?
If passed into law, the ABLE Act would create special savings accounts to be used for disability-related expenses without threatening other government benefits
On a beautiful autumn day in September, six accomplished adults came to Washington, D.C., representing the voice and experience of hundreds of others who share the common experience of being adults living with “pediatric-onset” neuromuscular disorders.
“We were the generation that was hoped for — and now we’re here,” said Vance Taylor, 33, a homeland security consultant from Washington, D.C., who...
Survey confirms importance of family caregivers to adults with muscle disease
In the recent National Transitions Survey conducted by MDA of our young adult and adult communities, 40 percent of respondents said their daily physical care assistance was provided by family caregivers; 41 percent indicated the majority of their transportation needs are met by a parent, spouse or family caregiver; and 26 percent included family financial support among their primary sources of...
Officials learn from MDA panel about improving access to higher education, employment and independent living for people with disabilities
When Angela Wrigglesworth, who has spinal muscular atrophy and uses a power chair, first started college at Texas A&M, she planned to be a business major.
Getting to the business school, however, involved crossing a set of train tracks, and one day, Wrigglesworth’s chair got struck on the tracks.
Wrigglesworth received help from bystanders to free her 300-pound chair before a train came...
This August, MDA reps and lawmakers will address issues facing youth with muscle disease as they grow into adulthood
Would you like meet with your congressman to talk about issues important to families facing neuromuscular disease?
Please join us for the MDA Fly Out.
For the third year in a row, MDA families and advocates are gearing up for the MDA Fly Out — annual meetings with congressional representatives held in their home districts throughout the August congressional recess.