Independence

For many individuals with neuromuscular diseases, finding a meaningful career can make for a richer, more independent life

posted on October 8, 2015 - 9:47am
Going from being a high school or college student to an independent, working adult can be challenging for almost anyone. But for individuals who live with neuromuscular diseases, the transition into the workforce can be especially overwhelming.  But young adults in the MDA community who have successfully made this employment leap agree that the rewards of meaningful work are worth the...

Funds from the Affordable Care Act are now available in most states to help people move out of, or avoid, institutional care

posted on May 6, 2011 - 3:38pm
The federal government is moving ahead with plans to expand access to home and community based services for individuals who receive Medicare and Medicaid benefits. HHS Secretary Kathleen Sebelius announced in April that $3.7 billion in federal funds will be made available to implement the Community First Choice Option, a provision of the new health care law (the Affordable Care Act) which...

Long used in Europe and Asia, these personal hygiene fixtures are being adopted in the US by people who need help using the bathroom

posted on March 31, 2011 - 11:55am
QUEST Vol. 18, No. 2
A few years ago, Bonnie Guzelf of Phoenix began having difficulty using the bathroom by herself. Guzelf, who has a slowly progressive form of ALS (amyotrophic lateral sclerosis), found that her hands, arms and legs were getting too weak to perform basic hygiene. A friend who is an occupational therapist suggested she get a bidet.

A state rehabilitation program remodeled my bathroom — and my life

posted on March 31, 2011 - 11:44am
QUEST Vol. 18, No. 2
I never thought I would be so excited about getting a new toilet, sink and shower. But my new fully wheelchair-accessible bathroom has made such a difference in my life, my attitude and my outlook that I can truly say this makeover has been a life-changing event. More than 10 years ago, I received a diagnosis of ALS (amyotrophic lateral sclerosis, or Lou Gehrig’s disease). Over the years, I’ve...

Wheelchair-accessible and very affordable, this Southern city is a hip destination for leisure travelers

posted on March 31, 2011 - 11:05am
QUEST Vol. 18, No. 2
Bright red and warm gold foliage creates an autumn bouquet shimmering through the tree-lined streets of downtown Little Rock. Restaurant windows are wide open to capture the crisp November air. Walking along the busy sidewalk, we are tempted to reach out and shake hands with the patrons. Fall has arrived in the Arkansas capital.
posted on January 1, 2011 - 4:54pm
QUEST Vol. 18, No. 1
Anne Wallace, speech-language pathologist and clinical associate professor in the Department of Communication Sciences & Disorders, University of Iowa in Iowa City, has been at that facility for 20 years. During that time, she’s had a long-standing relationship with the pediatric specialty clinics, including the MDA clinic directed by child neurologist Katherine Mathews, and has worked with...
posted on January 1, 2011 - 2:39pm
QUEST Vol. 18, No. 1
Gourmet cooks swear by their fancy professional stoves with six gas burners, convection ovens and warming drawers, but I believe the real kitchen workhorse is the slow-cooker — especially for people who use wheelchairs, have limited use of their hands or find conventional ovens and stovetops difficult to use. Rival introduced the Crock-Pot (a trademarked name) to consumers in the 1970s. The word...
posted on January 1, 2011 - 11:29am
QUEST Vol. 18, No. 1
As featured in More Make It Fast, Cook It Slow by Stephanie O'Dea, Hyperion, 2010 This is a fun and flavorful vegan meal that doesn’t leave you hungry 15 minutes later. I promise. I loved the sweet smoky flavor, and was thrilled at the depth of flavor that came from this spice combination. Serves 4