Independence

For many individuals with neuromuscular diseases, finding a meaningful career can make for a richer, more independent life

posted on October 8, 2015 - 9:47am
Going from being a high school or college student to an independent, working adult can be challenging for almost anyone. But for individuals who live with neuromuscular diseases, the transition into the workforce can be especially overwhelming.  But young adults in the MDA community who have successfully made this employment leap agree that the rewards of meaningful work are worth the...

Inspired by the one-armed drummer for Def Leppard, a musician with FSHD figured out a way to return to drumming

posted on July 1, 2012 - 12:00pm
QUEST Vol. 19, No. 3
John DeGeorge, 50, of Los Angeles, works as an IT (information technology) compliance consultant to make a living, but he lives to play the drums. “I think I was born with an interest in making music, or making noise,” he says. Being the son of a former drummer with the Glenn Miller Orchestra, such a passion for music must be in the genes.

Mainstream appliances are becoming more accessible every day

posted on January 1, 2012 - 2:40pm
QUEST Vol. 19, No. 1
You don’t have to do a total renovation of your kitchen to make your lifestyle more accessible. From storage solutions to preparing meals, minor changes can improve the functionality of a kitchen for someone with muscle weakness. Kitchen designers and houseware manufacturers are incorporating universal design elements into their work. People who have disabilities have more choices than ever when...

MDA’s 2011 Personal Achievement Award recipient for Montana has Dejerine-Sottas disease, helps others with disabilities

posted on October 3, 2011 - 3:53pm
When talking with Leanne Beers of Missoula, Mont., you can’t help thinking that this is one upbeat, optimistic woman. “Even though you have muscular dystrophy, or any limitation for that matter,” she says, “it doesn’t mean you can’t accomplish the goals you want. You just may have to go about it differently. There’s no reason you can’t be happy and thrive on life.”

The story you're about to read is true; the names have been changed to protect the guilty

posted on October 1, 2011 - 3:31pm
QUEST Vol. 18, No. 4
I’m fortunate in that many of my paid caregivers have been professional, reliable, respectful, pleasant and hard- working. Some have been with me for so long we think of them as family. Whether it was sharing my excitement over self-publishing a novel and moving into our new house, or helping me through the misery of my first months of diabetes and the nightmare of my mother’s breast cancer, they...

Bill Beall and Gail Ableman, who each have Friedreich's ataxia, live independently thanks to 'the kind of love that can overcome challenges'

posted on October 1, 2011 - 2:39pm
QUEST Vol. 18, No. 4
Sharing a life together in Spokane, Wash., Bill Beall Jr. and Gail Ableman — who each use power wheelchairs due to Friedreich’s ataxia (FA) — spend much of their time working out to maintain their independence. MDA’s Quest magazine and a love of exercise brought them together — and their love of each other makes possible their continued independence.

The Desktop Desk helped a California student with DMD finish school despite diminished hand and arm strength

posted on October 1, 2011 - 8:15am
QUEST Vol. 18, No. 4
David Davison is a friendly, outgoing young man who loved attending school. But last year, as David’s Duchenne muscular dystrophy progressed, his arm and hand strength decreased to the point where he could no longer participate in many classroom activities. Then one day, David’s special education class at Placer High School in Auburn, Calif., received a gift from a local service club: a new...

Officials learn from MDA panel about improving access to higher education, employment and independent living for people with disabilities

posted on September 28, 2011 - 5:31pm
When Angela Wrigglesworth, who has spinal muscular atrophy and uses a power chair, first started college at Texas A&M, she planned to be a business major.  Getting to the business school, however, involved crossing a set of train tracks, and one day, Wrigglesworth’s chair got struck on the tracks. Wrigglesworth received help from bystanders to free her 300-pound chair before a train came...