Independence

For many individuals with neuromuscular diseases, finding a meaningful career can make for a richer, more independent life

posted on October 8, 2015 - 9:47am
Going from being a high school or college student to an independent, working adult can be challenging for almost anyone. But for individuals who live with neuromuscular diseases, the transition into the workforce can be especially overwhelming.  But young adults in the MDA community who have successfully made this employment leap agree that the rewards of meaningful work are worth the...
posted on July 1, 2003 - 4:19pm
It's hard for wheelchair users to be independent when the rest of the world is set up for people at a standing height, and there are stairs and other obstacles everywhere we look. Fortunately, advances in technology have led to the design of mobility products that can adapt to the world around us, and the latest version should arrive in the marketplace this summer.

Array of treatments means myasthenia gravis usually isn't so grave

posted on May 1, 2003 - 9:47am
Charles Ranly, who's had MG for eight years, oversees the plantings at his Texas country club. Photo by Charlie Bublik

Staying upright with a neuromuscular disease

posted on December 1, 2002 - 5:58am
Some people have nightmares about falling off cliffs. Brad Williams has nightmares about falling — period. “Whenever I’m walking, falling down is always the major thought on my mind,” says Williams, 39, of Alexandria, Va. “It has to be on my mind a lot for me to be dreaming about it.” Williams has Miyoshi distal myopathy, a slowly progressive form of muscular dystrophy that primarily affects the...

Men with Duchenne MD find independence within their reach

posted on October 1, 2002 - 11:33am
Recently, the dad of a young boy with Duchenne muscular dystrophy (DMD) was trying to explain to a child psychologist about certain educational choices his son needed to make in order to be well prepared for adulthood.
posted on October 1, 2001 - 10:36am
Back in the 1950s when my husband was young, his relatives gathered every Christmas for a party and gift exchange. Significant amounts of "Christmas cheer" preceded the swapping of presents, leading to raucous appreciation of each item. But the biggest crowd pleaser was always the gifts for men. Back in...

Skills for school and play

posted on November 1, 1999 - 5:00pm
ln vol. 6, no. 5, we described occupational therapy for adults ("Skills for the Job of Living"). This story looks at OT for children, whose "jobs" are different and whose developing brains need special attention. I think we were in a big denial," says Faith Varcadipane of Satellite Beach, Fla., when she talks about the first year of her son's life.

Skills for the job of living

posted on September 30, 1999 - 5:00pm
This article, the first of a two-part series, focuses on occupational therapy for adults, in which the emphasis is on entry into or return to work, and social and self-care activities. Part 2 will discuss occupational and related therapies for children, in which the emphasis is on school, play and promoting physical and psychological development.