Independence

For many individuals with neuromuscular diseases, finding a meaningful career can make for a richer, more independent life

posted on October 8, 2015 - 9:47am
Going from being a high school or college student to an independent, working adult can be challenging for almost anyone. But for individuals who live with neuromuscular diseases, the transition into the workforce can be especially overwhelming.  But young adults in the MDA community who have successfully made this employment leap agree that the rewards of meaningful work are worth the...

MDA is partnering with federal agencies and other groups serving youth with disabilities to break down barriers for young people transitioning from childhood to adulthood

posted on December 6, 2012 - 3:31pm
Like many high school seniors, Drew is busy choosing a college and preparing for the big transition from life at home to life on a college campus. Unlike his peers, Drew has Duchenne muscular dystrophy.

CMMS Deshae Lott Ministries is accepting applications for quality-of-life grants and academic scholarships from people with disabilities; the next deadline is Nov. 1, 2012

posted on October 5, 2012 - 4:55pm
A small nonprofit organization is offering limited grants for in-home care to people with physical disabilities. The next quality-of-life grant application deadline is November 1, 2012.

'If I have a voice, I’m going to use it' says Jonathan Porter, MDA’s Personal Achievement Award recipient for 2013

posted on October 1, 2012 - 9:05am
QUEST Vol. 19, No. 4
Jonathan Porter has a problem with the word limitation. “Sure, people with muscular dystrophy have limitations,” he says, “but hey, everyone has limitations — whether you’re in a wheelchair or you’re too short or too skinny — we all have limitations. I say, don’t look at what you have as a limitation, look at it as who you are and get on with your life.” It doesn’t take long to realize this...

Professional home care providers can reduce family caregiver burnout while providing individualized service and greater independence for loved ones

posted on October 1, 2012 - 9:00am
QUEST Vol. 19, No. 4
Jeff Stafsholt is a Green Bay Packers fan second to none. Like the Wisconsin football champs, he has a winning attitude and a “never give up” mindset. To help manage the effects of limb-girdle muscular dystrophy, Jeff has a team of home care professionals who assist the 34-year-old as he independently quarterbacks his life.

A new federal program provides personal care aides for individuals with disabilities stranded in emergency shelters during a declared disaster

posted on August 13, 2012 - 6:00am
Wildfires, windstorms and floods have been in the news regularly this year. What if such a disaster suddenly hit your neighborhood? Would you be prepared?  Planning ahead for emergency situations is especially important for people who have disabilities that affect mobility and self-care. You are in the best position to plan for your own safety and well-being since you know your functional...

Expert information about higher education, living independently at college and employment is available in upcoming MDA webinars for young adults with neuromuscular diseases

posted on August 7, 2012 - 9:15am
Update (Aug. 22, 2012) — Links have been added to the archived versions of each webinar. MDA’s public webinar series has a host of offerings in August for young adults with neuromuscular diseases who are interested in higher education and employment.

The right equipment makes it easier

posted on July 1, 2012 - 3:00pm
QUEST Vol. 19, No. 3
The first hint that I was exhibiting symptoms of a muscular disorder came to me in 1997, when I began having problems rising from a church pew. I realized that I could no longer rise simply by grasping the back of the pew in front of me and pulling myself up. I decided my muscle weakness was simply a result of insufficient activity and advancing age, and that the problem could be overcome by...