For many young adults with neuromuscular disease, the challenges and rewards of college offer a steppingstone to greater independence

posted on July 14, 2015 - 3:23pm
“I was already signed up for Duke, and was wait-listed for Yale, but waiting for Harvard. When I opened the Harvard letter, I got the shock of my life, and that was it!” says 17-year-old Caroline Zheng on being accepted to her dream school, Harvard, where she’ll start classes in the fall.

Sleep aids can help people with neuromuscular diseases and their caregivers get a good night's sleep

posted on September 1, 2006 - 3:07pm
QUEST Vol. 13, No. 5
When turning over in bed becomes difficult for a person with muscle weakness, usually two people suffer sleep deprivation — the “turnee” and the “turner,” or person who wakes up several times a night and helps with repositioning.

A new tub or towel rack can boost accessibility and value

posted on March 1, 2005 - 10:49am
Whether you see your bathroom as a place for reflection, retreat and renewal, or simply as a necessary facility, you can make it fully functional and absolutely accessible. Create a lush jungle atmosphere ... or a warm and cozy womb ... or simply a place where toilet, tub and sink are placed with your safety and convenience in mind. The market offers endless choices, limited only by your...
posted on November 1, 2004 - 4:39pm
Getting your own place to live is a significant piece of the independence puzzle. There are many things to consider before going out on your own. Can you pay your bills? Do you need assistance, and how will you pay for it? How will you cover the basics such as cooking, cleaning and laundry? The housing situation that will work best for you depends on your abilities, limitations and funding...

Remodeling can keep you safe and comfortable in the home you love

posted on September 1, 2004 - 1:52pm
Remodeling is a daunting process always disruptive and often intimidating down to the last detail. That said, perhaps you've been thinking about making changes to your home to accommodate your changing physical abilities. A list of the "Top Ten Reasons for Wanting to Remodel" could include: 10. Water runs down your armpits every time you wash your hands because the sink and counters are too high.

Hospice focuses on patient's wishes

posted on November 1, 2003 - 1:07pm
Smack in the middle of a frosty Michigan winter, Jackie Edwards Jr. was steaming like a hot summer day with anger. Edwards was fuming mad because he had learned that his mother had passed up tickets to a Metallica concert; she worried it would harm his health. Dawn Edwards feared that going to a raucous concert by the heavy metal band during cold weather would simply be too much for her son. At...
posted on September 1, 2003 - 3:08pm
The kitchen is the heart of the home. Whether preparing elaborate holiday meals, huddling over homework, reading the morning paper or chatting with friends, people usually make the kitchen the busiest room in the house. Kitchens for everyone are universal
posted on May 1, 2003 - 9:57am
"To sleep? perchance to dream! Ay, there's the rub." — William Shakespeare Hamlet, III:1 (1601) It's entirely possible that Shakespeare wrote these words while fighting a bout of insomnia. But even if they were written during the day it's obvious that, more than 400 years ago, the Bard understood the importance of getting a good night's sleep.