For many young adults with neuromuscular disease, the challenges and rewards of college offer a steppingstone to greater independence

posted on July 14, 2015 - 3:23pm
“I was already signed up for Duke, and was wait-listed for Yale, but waiting for Harvard. When I opened the Harvard letter, I got the shock of my life, and that was it!” says 17-year-old Caroline Zheng on being accepted to her dream school, Harvard, where she’ll start classes in the fall.
posted on July 1, 2009 - 2:34pm
QUEST Vol. 16, No. 3
Who doesn’t love recess? Remember those school days … you sat at your desk with your feet dangling from your chair, dreaming of the moment when the teacher would let you and your friends go to recess? Rain or shine, you got a well-deserved break from your daily routine, and you made the most of every second of it.
posted on September 1, 2008 - 5:16pm
QUEST Vol. 15, No. 5
My husband Marty and I had been told since Craig was in nursery school and Steven was in kindergarten that our sons had Becker muscular dystrophy. We couldn’t see it. They were running around and playing just like every other kid on the block. To us, it wasn’t real.
posted on September 1, 2008 - 11:50am
QUEST Vol. 15, No. 5
When Andy and Becky Donohoe decided to purchase a house after renting for 20 years, they knew they wanted to remain in Berkeley, Calif., because of the many services the community offered for people with disabilities.
posted on September 1, 2008 - 10:17am
QUEST Vol. 15, No. 5
Many families affected by muscle-wasting diseases are trapped in the funding gap – struggling to make ends meet and struggling to pay for assistive technology (AT), including home modifications. The funding maze is full of twists, turns and possibly some dead ends. Here are some local, state and national resources that may help fill the funding gap, or at least point you in the right...
posted on September 1, 2008 - 10:16am
QUEST Vol. 15, No. 5
Simplify the bathroom

A home ramp primer

posted on September 1, 2008 - 10:13am
QUEST Vol. 15, No. 5
You’re one of the lucky few if your home’s entrance accommodates a wheelchair without any modifications. But before you throw down a metal ramp purchased on eBay, consider all your options and make an entrance of which you can be proud. First things first You want the ramp to be safe. Be familiar with ADA requirements prior to buying. Basic ADA ramp requirements are:
posted on May 1, 2008 - 4:09pm
QUEST Vol. 15, No. 3
For more on building a good relationship with your child’s doctor, see the May-June 2008 Quest for “Doctors, Parents and Kids.”