Products and tips to improve your sleep and maximize energy and comfort during waking hours
It’s a catch-22: Getting a good night’s sleep is an important way for people living with neuromuscular diseases to help maximize their health and well-being. But the physical symptoms of many of these diseases can themselves limit the restfulness of sleep.
“We tend to overlook the importance of sleep; it’s so basic,” says Sharon Greenberg, an occupational...
The best way to challenge misconceptions about what it means to have a disability is to share our stories and celebrate our differences
When I was 2, I was diagnosed with central core disease (a disease that causes problems with the tone and contraction of skeletal muscles). Doctors told my parents, who were trying to wade through the unknown waters of this thing called “neuromuscular disease,” that I would never be able to walk on my own without a walker or crutches. But years of physical therapy, leg braces, a walker and a pair...
Reaping the benefits of horticulture therapy in your own backyard
When your mother told you to “stop and smell the roses,” it may have been more than sweet advice. According to the American Horticulture Therapy Association, a professional organization that provides certification for horticulture therapists, there is a growing awareness of the benefits humans enjoy when exposed to plants and gardens.
There sure is a lot of happiness going around — videos going viral with giggling babies, happy dogs and even happy elephants. For the past year we've watched montages of people joyfully taking to the streets dancing to the infamous Pharrell Williams’ hit song, “Happy.”
Film buff Zach Smith finds a new technology to aid people with neuromuscular disease
When he was 17 years old, Zach Smith, who received a diagnosis of Duchenne muscular dystrophy (DMD) at age 6, began researching technologies that could help him use his arms to do things he had trouble with, such as eating or playing Ping-Pong.
Solutions to improve everyday mobility and enable increased activity
For many MDA families living with neuromuscular disease, there are few challenges more persistent and more taxing on a daily basis than those related to basic mobility. While each person’s level of physical activity is relative to his or her specific diagnosis — as well as the corresponding exercise parameters established ahead of time by his or her care team — mobility issues affect the entire...
MDA's 2014 Clinical Conference on neuromuscular disease brings together health professionals from across the country and focuses on improving lives through excellence in care
"Optimizing Care: Improving Lives Through Clinical Excellence" is the theme of the 2014 MDA Clinical Conference, which takes place March 16-19 at the Hyatt Regency in Chicago. A secondary theme — "I am progress" — also will be in evidence, referencing the crucial role that MDA clinic team members nationwide have in providing expert medical care in neuromuscular disease and identifying new...