Daily Living

Helpful tips to minimize end-of-year stress and maximize the spirit of the season

posted on October 8, 2015 - 9:37am
As the autumn leaves start to fall, the holiday season is upon us. And between the hustle and bustle of decorating, shopping, food preparation and social gatherings, the holidays can be a source of increased stress. Anyone can feel overwhelmed this festive time of year, but for people living with neuromuscular diseases, managing the additional activities and expenses is crucial to maintaining...

Products and tips to improve your sleep and maximize energy and comfort during waking hours

posted on October 8, 2015 - 9:35am
Quest Fall 2015
It’s a catch-22: Getting a good night’s sleep is an important way for people living with neuromuscular diseases to help maximize their health and well-being. But the physical symptoms of many of these diseases can themselves limit the restfulness of sleep.  “We tend to overlook the importance of sleep; it’s so basic,” says Sharon Greenberg, an occupational...

The best way to challenge misconceptions about what it means to have a disability is to share our stories and celebrate our differences

posted on April 21, 2015 - 9:19am
Quest Spring 2015
When I was 2, I was diagnosed with central core disease (a disease that causes problems with the tone and contraction of skeletal muscles). Doctors told my parents, who were trying to wade through the unknown waters of this thing called “neuromuscular disease,” that I would never be able to walk on my own without a walker or crutches. But years of physical therapy, leg braces, a walker and a pair...

Reaping the benefits of horticulture therapy in your own backyard

posted on April 21, 2015 - 9:15am
Quest Spring 2015
When your mother told you to “stop and smell the roses,” it may have been more than sweet advice. According to the American Horticulture Therapy Association, a professional organization that provides certification for horticulture therapists, there is a growing awareness of the benefits humans enjoy when exposed to plants and gardens.
posted on April 21, 2015 - 9:12am
Quest Spring 2015
There sure is a lot of happiness going around — videos going viral with giggling babies, happy dogs and even happy elephants. For the past year we've watched montages of people joyfully taking to the streets dancing to the infamous Pharrell Williams’ hit song, “Happy.”

Film buff Zach Smith finds a new technology to aid people with neuromuscular disease

posted on April 21, 2015 - 9:11am
Quest Spring 2015
When he was 17 years old, Zach Smith, who received a diagnosis of Duchenne muscular dystrophy (DMD) at age 6, began researching technologies that could help him use his arms to do things he had trouble with, such as eating or playing Ping-Pong.

Solutions to improve everyday mobility and enable increased activity

posted on April 21, 2015 - 9:09am
Quest Spring 2015
For many MDA families living with neuromuscular disease, there are few challenges more persistent and more taxing on a daily basis than those related to basic mobility. While each person’s level of physical activity is relative to his or her specific diagnosis — as well as the corresponding exercise parameters established ahead of time by his or her care team — mobility issues affect the entire...

MDA's 2014 Clinical Conference on neuromuscular disease brings together health professionals from across the country and focuses on improving lives through excellence in care

posted on March 7, 2014 - 3:01pm
"Optimizing Care: Improving Lives Through Clinical Excellence" is the theme of the 2014 MDA Clinical Conference, which takes place March 16-19 at the Hyatt Regency in Chicago. A secondary theme — "I am progress" — also will be in evidence, referencing the crucial role that MDA clinic team members nationwide have in providing expert medical care in neuromuscular disease and identifying new...