On being treated as a person first during hospitalizations
posted on April 1, 2013 - 9:19am
MJ Purk
Individuals with neuromuscular disorders oftentimes spend a great deal of time in the hospital and even more time interacting with those who work in the medical profession. In their interactions with medical personnel, some individuals are lucky enough to experience more than the expected amount of caring.
posted on April 1, 2013 - 9:15am
Note: Click on photos to enlarge.
People with MD have an increased risk of falling and decreased ability to recover muscle after injury; these strategies and products can help in ice and snow
posted on February 8, 2013 - 11:27am
Winter can be a beautiful time of year — especially when you're inside under a warm blanket, drinking hot cocoa and looking out the window at the glistening white and the snow-coated branches. Unfortunately, most people have to carry out their daily lives regardless of slippery conditions.
Slipping and falling are hazards for everyone in winter weather, but for people with neuromuscular...
One-hour webinar, ‘Straightening the Growing Spine,” describes bracing and surgery options for children with a spinal curvature caused by a neuromuscular disorder
posted on January 25, 2013 - 10:23am
A one-hour, MDA-sponsored webinar features two physicians and the parent of a child with spinal muscular atrophy (SMA) who has undergone bracing and surgery for a spinal curvature, as well as questions and answers from listeners.
An upcoming webinar from the Medicare Rights Center explores all aspects of Medicare coverage of durable medical equipment such as wheelchairs and hospital beds
posted on January 23, 2013 - 4:00pm
Durable medical equipment (DME), such as wheelchairs, walkers, portable oxygen devices and hospital beds, can be very expensive — and the process for obtaining them from Medicare can be very confusing.
Learn about Medicare coverage of DME and get the latest information on obtaining such equipment in a webinar Tuesday, Jan. 29, from 2 to 3 p.m. Eastern time.
“Medicare Coverage of...
From his first washing-machine-sized vent to his current ‘toy’ model, writer Mike Murphy has borne witness to the evolution of a lifesaving technology
posted on January 7, 2013 - 9:25am
For some reason, June 27 keeps popping up in my family’s history. June 27, 1889, was my grandfather’s birthday. It was also the date upon which he married my grandmother, 20-some years later. On a far less significant — but fun — note: It was on June 27, 1977, that my parents loaded me up in our powder blue Pinto station wagon, and took me to the movie theater to see the original “Star Wars...
Advice from a home health care agency owner
posted on January 7, 2013 - 9:23am
In the Fall 2012 issue of Quest, we ran an article about the benefits of hiring in-home care, written by Amy Nelson, the owner of a large home health agency in the Midwest (Getting Care: There’s No Place Like Home). Among the responses we received was this one, which we forwarded to Amy Nelson for comment:
