Exploring the unique dynamic — its blessings and occasional hurdles — of one sibling caring for another with neuromuscular disease

posted on October 8, 2015 - 9:51am
In a small Detroit apartment, Sam Barash, 32, lives with and cares for his 20-year-old, soon-to-be 21, sister, Angela Barash, who is living with myotonic muscular dystrophy and myasthenia gravis.
posted on May 1, 2008 - 9:23am
QUEST Vol. 15, No. 3
When you live at home, your parents tend to do everything for you. Food just magically appears in the refrigerator, electricity and water grow on trees and your service dog’s piles in the backyard disappear into thin air.
posted on July 1, 2007 - 11:29am
QUEST Vol. 14, No. 4
I Like to Run Too — Two Decades of Sitting, by Stacy Zoern, 198 pages, 2006, $16.95. Science & Humanities Press,
posted on March 1, 2007 - 11:32am
QUEST Vol. 14, No. 2
We hold a special place in our hearts for those who help us with housework, school work, dressing, eating, toileting, breathing ... in short, our personal care assistants (PCAs). Often such assistance comes from our closest family members and friends, and they deserve at least a bouquet of flowers a day, plus a medal. Other PCAs are at first strangers who are being paid to help, but who provide a...

Working conditions, population shifts make good personal assistants hard to find — and keep

posted on March 1, 2007 - 11:05am
QUEST Vol. 14, No. 2
Wanted: Entry-level Taco Bell “crew worker.” Candidate must be able to perform one or more repetitious tasks in a highly standardized manner and operate automatic machinery. Pay: “competitive” wage with the possibility of raises. Immediate access to basic benefits package. Generous 401K match. Opportunities for training and career advancement.

How to avoid a bumpy ride with your care assistant

posted on March 1, 2007 - 9:50am
QUEST Vol. 14, No. 2
Personal care attendants, personal assistants, attendant caregivers: Whatever you want to call them, we all know how important they are to our independence. Depending on somebody isn’t easy. Here are some ways to make the road smoother. Communication is key
posted on January 1, 2007 - 1:32pm
QUEST Vol. 14, No. 1
For more than 20 years, I've read with the aid of a page turner, which is basically an easel upon which a book/magazine rests. By pressing a switch, a mechanical arm swings across, presses a lump of putty into the right-hand page, swings back and (hopefully) turns the page.

Fear, dread and loathing

posted on November 1, 2006 - 1:23pm
QUEST Vol. 13, No. 6
For many parents, the mere words induce brain fog, followed by a strong desire to talk about something else. A special needs trust (SNT) is a way to ensure the financial future of a child with a disability. It’s one of those things parents know they ought to get done — but which often is pushed to the bottom of the to-do list because of "busyness," confusion, lack of money and a subconscious...