Exploring the unique dynamic — its blessings and occasional hurdles — of one sibling caring for another with neuromuscular disease

posted on October 8, 2015 - 9:51am
In a small Detroit apartment, Sam Barash, 32, lives with and cares for his 20-year-old, soon-to-be 21, sister, Angela Barash, who is living with myotonic muscular dystrophy and myasthenia gravis.

... that will lighten the load of your caregivers and yourself

posted on October 1, 2010 - 4:45pm
QUEST Vol. 17, No. 4
I was taught it is better to give than to receive. Don’t ask for handouts. Pull your own weight. All my life, I told myself, “You are only handicapped if you allowed yourself to be handicapped.” That belief worked for me when I could still stand and walk. Now that my legs don’t function and my hands are extremely weak, I recognize that my physical being has limitations. I have readjusted my self-...
posted on October 1, 2010 - 3:25pm
QUEST Vol. 17, No. 4
“There are four kinds of people: those who are caregivers, those who have been caregivers, those who will be caregivers, and those who will need a caregiver.”  ~ Rosalynn Carter While the month of November is recognized as National Family Caregivers Month, a salute to caregivers is warranted all 12 months of each year.

A long-term caregiver reveals her secret for survival

posted on October 1, 2010 - 1:50pm
QUEST Vol. 17, No. 4
While cleaning a messy drawer, I began to smile and then chuckle at the foolish objects I have kept. When will I ever need a used twisty tie or a bent nail? And then there are the keys that don’t seem to fit anything. Am I just deceiving myself in believing these should be saved? Don’t laugh at me, laugh with me. I believe laughter can change the world, one giggle at a time. Come on, give it a...
posted on October 1, 2010 - 11:15am
QUEST Vol. 17, No. 4
Featured in this issue: Books by people affected by neuromuscular diseases include For the Love of Pete: The Story of Our ALS Journey by Marlene Hoyland Zaleski, whose husband died of ALS; The Samurai and the Mujahideen, a story set during the Soviet-Afghanistan war by Ben Dowling, who has Friedreich's ataxia; Shadows on the Ceiling: A Memoir of Disability and Abuse, a tale of a woman's...

Events, awards and campaigns are planned to recognize and raise the status of professional caregivers during Direct Support Professionals Week

posted on September 13, 2010 - 3:11pm
Do you know an outstanding professional caregiver?  This would be a good week to show some special appreciation for the important work he or she does. Spurred on by organizations that represent professional caregivers, the United States Senate has declared the week starting Sept. 12, 2010, to be the third annual National Direct Support Professionals Recognition Week. Events are planned...

A sampler of products to make your ride safer and easier

posted on July 1, 2010 - 5:34pm
QUEST Vol. 17, No. 3
This two-minute slideshow contains 24 accessories that could make your life safer and easier while in your wheelchair or scooter. The presentation is just a sampler of the many products available online. At any point, you can pause the show to study the product or read the name or web address. The items featured in the slideshow are displayed with website addresses, also listed below. If you see...

Four scholarships named for former MDA National Goodwill Ambassador Mattie Stepanek are designed to help caregivers gain skills

posted on May 20, 2010 - 4:41pm
Four $2,500 scholarships — named in honor of a former MDA National Goodwill Ambassador — are being offered by the Rosalynn Carter Institute for Caregiving.  Deadline for applications is June 1. The scholarships will provide financial assistance to family, professional, or paraprofessional caregivers of any age who are seeking training or education in specific skills, procedures and...