MDA Matters Winter 2009

by Quest Staff on January 1, 2009 - 3:07pm

QUEST Vol. 16, No. 1

Featured in this article: Brothers attend governor's proclamation signing ** Recognition for MDA Task Force member ** Olympic Gold Medalist drops in for dinner ** MDA and Walgreens team up to provide flu shots ** MDA wins awards for excellence in design ** Double milestone for MDA Art Collection.

Brothers attend gov’s proclamation signing

Twin brothers Jacob and Brett Rhoad, 10, of Chapin, S.C., were guests of honor when South Carolina Governor Mark Sanford signed a proclamation on October 7 announcing the state’s proclamation on October 7 announcing the state’s International Association of Fire Fighters (IAFF) Fill-the-Boot Day. On hand with the boys, both of whom have Duchenne muscular dystrophy, were with their mother, Julie, and members of IAFF Local #793.

Recognition for MDA Task Force member

A member of MDA’s National Task Force on Public Awareness has received a prestigious award from Northwestern College in Orange City, Iowa.

Rob Roozeboom

Rob Roozeboom of Sheldon, Iowa, received the school’s Distinguished Service to Humankind Award during homecoming celebrations.

Roozeboom, 32, learned as a teen that he has muscular dystrophy, later receiving a definitive diagnosis of limb-girdle muscular dystrophy. After graduating from Northwestern, he founded RISE Ministries, an organization that encourages teens and adults to overcome adversity. Every day he shares his insights on Rise Above Radio, broadcast by more than 250 stations worldwide. His ministry also produces an annual Christian music festival and sponsors a mission trip experience for teens.

In 2005, Roozeboom received Iowa’s MDA Personal Achievement Award.

Olympic Gold Medalist drops in for dinner

Former Massachusetts MDA State Goodwill Ambassador Emily Liston and her family recently had the chance to have dinner with an Olympic gold medalist.

Olympian Angela Hucles visits Emily Liston.

Angela Hucles, a member of the U.S. soccer team that took the gold at the 2008 Olympic Games in Beijing, stopped by in September to visit with Liston at her home in Braintree, Mass. Hucles and Liston (who has Duchenne muscular dystrophy) met a few years earlier at an MDA “Muscle Team” fundraising event in Boston and have stayed in touch ever since.

MDA Massachusetts Health Care Service Coordinator Andrew Bunyard said, “Our Boston team is very proud that its events have the power to create such long-lasting friendships for the people we serve.”

Muscle Team events bring well-known athletes, community leaders and MDA families together to support MDA.

MDA and Walgreens team up to provide flu shots

MDA has partnered with Walgreens pharmacies to provide flu shots at no cost to people with muscular dystrophy and related diseases who are registered with the Association.

Annual flu shots are particularly important for people with muscle-wasting diseases because their respiratory systems often are weakened, turning a “simple case of the flu” into a potentially life-threatening event. A voucher system makes it convenient to get the flu shot at Walgreens.

First check with your doctor about receiving the vaccine, then contact your local MDA Health Care Service Coordinator; (800-572-1717) to obtain a voucher you can take to Walgreens. Vouchers are good through Feb. 28, 2009.

Vaccinations will be administered at Walgreens stores in most states, but in some areas, Walgreens has contracted with other health care agencies to provide this service. Check with MDA to determine the location for your area.

MDA design department wins several awards

Abbey Umali

MDA’s hard-working design department, which handles all MDA publications, special projects and fundraising campaigns, as well as the design of Quest magazine, recently was honored by the venerable American Graphic Design Awards competition. The contest was open to for-profit and nonprofit design departments and agencies around the U.S.

Aisles of Smiles

Winning awards for excellence in design were:

Double milestone for MDA Art Collection

Paint Brushes

The 350th work recently was added to the MDA Art Collection, and its acquisition has double significance.

Paint Brushes

Howard Feigenbaum’s photograph, “Artist’s Brushes in Sunlight,” depicts paint brushes that in fact belonged to his late mother Adele, whose work “Balloon Vendor” was one of the first pieces acquired by the Art Collection in 1992.

Feigenbaum’s photo is the first work in the Collection that was created by a descendant of a Collection artist. The works are on side-by-side display at MDA’s national headquarters in Tucson, Ariz.

Feigenbaum, 62, of Hemet, Calif., has been making photos for more than 30 years. He has facioscapulohumeral muscular dystrophy.

To see all the pieces in the MDA Art Collection online.

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