MDA Matters Summer 2013

Young riders give thumbs-up during the Ride for Life in Pennsylvania. Right: Attendees at the Black- N-Blue Ball join MDA National Goodwill Ambassador Bryson Foster in making a muscle.
by Quest Staff on July 1, 2013 - 9:02am

Quest Vol. 20, No. 3

Back-to-back Harley-Davidson events raise a ruckus

Whether it’s raising funds through special rides and events, or simply giving a child the ride of a lifetime in a sidecar at MDA summer camp, Harley-Davidson’s support has had an immeasurable impact on MDA families since 1980. This May, two annual Harley-Davidson events set income records, together raising nearly $2 million to support MDA programs.

In Milwaukee, more than 1,300 people attended the annual MDA Harley-Davidson Black-N-Blue Ball, which raised $826,051. The evening was co-anchored by MDA National Vice President Jann Carl; MDA National Goodwill Ambassador Bryson Foster; and several local Milwaukee MDA goodwill ambassadors. The event was rich with camp appeals, live auctions of kids’ artwork and lots of fun for all.

The next day, the roars of Harley-Davidsons could be heard through the rolling hills of eastern Pennsylvania as Ride for Life XXVI came to life. More than 1,150 riders raised $936,751, showing once again why it’s the largest Harley-Davidson pledge ride in the world. Bryson Foster (who traveled overnight to get from Milwaukee to Allentown, Pa.) and MDA families from eastern and central Pennsylvania delivered MDA’s message, motivating all! “MDA is so grateful to all our friends at Harley-Davison, and we salute our MDA teammates who made this extra-special weekend possible,” says Foster.

New video of hope from MDA

An inspiring new MDA video tells the story of the Muscular Dystrophy Association’s battle against muscle disease, showing just how far we’ve come from the days when such diseases were considered “incurable.”

The three-minute video, 2013 MDA State of Research and Therapies, begins with a historical overview of MDA’s groundbreaking work in neuromuscular diseases. It then details recent advances in research and therapies, including encouraging first-person reports from scientists attending the MDA Scientific Conference in Washington, D.C., this April. Also discussed are the exciting clinical trials, drug therapies and partnerships with major biotech firms and pharmaceutical companies that are enabling us to see treatments on the horizon.

To view this uplifting video, go to 2013 MDA State of Research and Therapies. Then share it with your family and friends! MDA is hoping to have 10,000 views by the end of August, just in time for the MDA Show of Strength Telethon.

MDA can help after a severe weather emergency

With the summer storm season upon us, now is a good time to make sure you have MDA’s toll-free number saved in your phone’s contact list. If you need assistance with storm-damaged or missing durable medical equipment, or if you have had to evacuate to a different area and need MDA services (such as visiting an MDA clinic), contact the nearest MDA office by calling (800) 572-1717. Following especially severe weather events, MDA tries to reach those it serves in the affected areas; please make sure your local MDA office has your current home/cell phone numbers and email address. For additional information, including specific emergency preparation strategies for people with neuromuscular disease, go to MDA Emergency Resources for Families or contact your local office.

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