MDA Matters Summer 2011

From left to right: MDA's "American Heroes" public awareness campaign; freelance writer, Deshae Lott; and WWE Superstar Triple H and Max LaCaria, an MDA goodwill ambassador
by Quest Staff on July 1, 2011 - 11:13am

QUEST Vol. 18, No. 3

Featured in this article: WWE/MDA Community Champions * Transitions Resource Center * MDA's American Heroes campaign * Quest freelancer wins EXCEL award

WWE and MDA to recognize young ‘Champions’

Do you know an exceptional kid between the ages of 6 and 17 who has volunteered for MDA or who has supported someone with a neuromuscular disease? Here’s your chance to nominate him or her for some well-deserved recognition.

WWE (World Wrestling Entertainment) and MDA are looking for two Community Champions this summer: young people who have demonstrated exceptional commitment to supporting MDA or who have made a significant contribution to an individual with muscle disease within the last two years.

From this group of dedicated kids, two will be selected to receive four tickets to a WWE live event and a special meet-and-greet with a WWE Superstar or Diva.

But hurry: All entries must be submitted via email to by Wednesday, Aug. 31. Individuals may enter themselves (with parental consent) or be nominated by family, friends and peers.

WWE is sponsoring the contest to “inspire young people across the United States to make a difference in the lives of those affected by muscular dystrophy,” said WWE Superstar Triple H, a member of MDA’s Muscle Team.

To enter, send an email describing the individual being nominated (age, interests, activities, contact information, etc.) and documenting the volunteer work done for MDA or in support of a person with a neuromuscular disease covered by MDA. You may include a photo.

New MDA resource for adults with ‘childhood diseases’

MDA has launched the Transitions Resource Center, an online resource for the growing population of young adults who are living longer with “pediatric” neuromuscular diseases, thanks to improved care and technology.

The center is designed to help teens and young adults with muscle diseases who are “transitioning” to the next stage of life, whether it’s college, career, moving away from home or another major step. The center also offers plenty of interactive opportunities to get involved and share your experiences, including the ability to post comments, video and blogs.

To learn more, read the Advocacy column in this issue, and visit

MDA supports IAFF ‘American Heroes’

For 57 years, the International Association of Fire Fighters (IAFF) has supported MDA with steadfast drive and uncommon caring — and now MDA wants to spread the news about all the good these American heroes do in their communities.

MDA’s “American Heroes” public awareness campaign draws attention not only to the heroism fire fighters show every day in the line of duty, but also to the ways they go above and beyond for those in their communities who need help.

For the MDA community that includes such things as Fill the Boot drives, countless hours volunteering at MDA summer camps, and numerous other acts of generosity and commitment.

Want to highlight the American Hero fire fighters in your community? Contact your local MDA office to learn how.

Quest freelancer wins EXCEL award

Quest magazine is fortunate to have the benefit of many talented freelance writers and, over the years, several have won awards for their articles in the magazine. The most recent is teacher, minister and philanthropist Deshae E. Lott, who won a gold EXCEL award from Association Media and Publishing for her "From Where I Sit” column in the Summer 2010 issue of Quest.

Lott, of Bossier City, La., has limb-girdle muscular dystrophy and teaches online English courses for Louisiana State University. Her foundation, CMMS Deshae Lott Ministries, offers academic and quality-of-life scholarships to people with disabilities.

Lott’s winning column, Call Me a ‘Good Cripple’ If You Must, examined the ways disability is perceived by society, and encouraged responding to misperceptions in ways that build bridges.

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