MDA Matters Fall 2013

by Quest Staff on October 3, 2013 - 9:00am

Quest Vol. 20, No. 4

New painting joins MDA Art Collection

Longtime readers of Quest magazine will recognize the artist’s name attached to this latest addition to the MDA Art Collection. As a writer, Barbara Twardowski is a regular contributor to these pages, covering a wide range of subject matters. However, several years ago, on a whim, she took a class and, lo’ and behold, discovered she had talent (see An Accidental Artist: Let Yourself Play!). “Welcome” is the title Barbara gave this 16-by-20-inch painting. “It was inspired by the charming Creole cottages in Louisiana. I love the details in the architecture, big, welcoming porches and the smell of gumbo in the air. I used acrylics — mixing the paint on the canvas instead of a palette.”

View entire BMD Conference online

On Aug. 24, the annual Becker Muscular Dystrophy Conference was held in Baltimore, free to all participants with BMD and their family and friends. Presented by MDA and John Hopkins Medicine, the conference could be attended either in person or online.

The daylong agenda emphasized “optimizing the lived experience of BMD” through expert presentations on clinical care, research updates and current clinical trials. Other presentations addressed workplace accommodations, navigating resources and other daily living issues.

A video of the entire forum is available online at

Flu season is near

For people with weak respiratory muscles due to neuromuscular disease, the flu can be a life-threatening illness. One way to prevent it is to get a flu shot. Flu season often starts to peak in November, so October is an ideal time to get a shot. Of course, check with your doctor before obtaining any vaccine, especially if you’re affected by myasthenia gravis, polymyositis or dermatomyositis, or if you’re taking immune-suppressing medications such as corticosteroids.

If your current health coverage doesn’t include seasonal flu vaccines as a preventive health benefit, the MDA flu shot program can help. Individuals affected by neuromuscular disease can receive a free flu shot through their local MDA-sponsored clinic, or they can receive reimbursement (up to $35) for the cost of flu vaccines received from licensed health professionals, including those located at retail pharmacies.

Wisconsin MDA Goodwill Ambassador Reagan Imhoff and MDA National Goodwill Ambassador Bryson Foster make a muscle with riders representing Schaeffer’s Harley-Davidson dealership in Orwigsburg, Pa.

Because individuals affected by neuromuscular disease are at increased risk from the flu, it’s important to stay informed to protect yourself and your family. For more information, visit MDA’s Flu Season Resource Center.

Riders celebrate Harley’s 110th anniversary and MDA

More than 150,000 Harley riders from around the globe descended on Milwaukee to celebrate Harley-Davidson’s 110th anniversary held Aug. 29-31. Led by the Parade of MDA Heroes — the top 110 fundraisers for MDA — 6,000 riders cruised in a two-hour, five-mile-long parade starting at Miller Park (where the Brewers play) and culminating at Lakeshore Park (on the shores of Lake Michigan).

Harley-Davidson support for MDA began in 1980, and since then, the Harley-Davidson family of customers, dealers, suppliers and employees has raised more than $83 million to aid research and services programs for children and adults with muscle diseases. Thank you, Harley heroes!

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