Making the Most of Summer Vacation: MDA Fly Out 2010

Article Highlights:
  • The MDA Fly Out offers MDA families, sponsors, volunteers, clinicians and researchers an opportunity to meet with their elected officials and discuss key legislative issues relevant to the MDA community.
  • MDA's Advocacy office schedules the meetings, and local MDA community members are invited to share information about the Association's programs.
  • Contact your local MDA office to get involved today.
by Annie Kennedy on July 1, 2010 - 5:30pm

QUEST Vol. 17, No. 3

There’s an event that happens frequently in Washington, D.C., known as the “Fly In.” Members of a special interest group fly in from around the country and meet with their elected representatives on Capitol Hill. These meetings are extremely effective at heightening awareness of the group’s needs and building relationships with members of Congress.

For the past several summers, MDA has conducted a cost-effective variation on the Fly In — the MDA Fly Out. When Congress adjourns for the August recess, elected representatives fly out to their home districts and meet with members of local MDA communities — families, sponsors, volunteers, clinicians, researchers. These meetings increase their knowledge of neuromuscular disease and of legislative issues of key importance to the MDA community.

Please consider being a part of this exciting and unique opportunity this August.

How does the MDA Fly Out work?

Annie Kennedy

MDA’s Advocacy office schedules the meetings and prepares all necessary materials. Local MDA community members (this means YOU) are invited to attend the meeting to share information about MDA’s services and supports that exist right in the congressional members’ back yards, and to highlight the sponsors, medical facilities and local heroes who make it all possible.

Individuals also share personal stories that “put a face” on neuromuscular disease, and describe the potential impact that legislation and health policy would have on them.

These personal meetings are a terrific way to build relationships with elected officials and keep the needs of the MDA community in their minds as they vote on significant legislation.

How can you get involved?

Contact the local MDA office nearest you. (To find your local office, go to and enter your ZIP code, or call 800-572-1717.) You don’t need any prior experience — what matters is that you are a member of the local MDA community with a voice that needs to be heard.

Please contact your local MDA office if you would like to participate or would like more details about the MDA Fly Out program. More information also can be found at or by calling the Advocacy office at (202) 828-8560.

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