Mailbag Spring 2015

Feedback from Quest readers and the MDA community

by Quest Staff on April 21, 2015 - 9:01am

Quest Spring 2015

On the Job

Editor’s note: In her From Where I Sit column in the Winter 2015 issue of Quest (Get to Work), Emily Munson discussed how she doesn’t let her type 2 spinal muscular atrophy prevent her from enjoying a successful career as an attorney. She also offered tips on how best to overcome common challenges and excuses when it comes to balancing a meaningful career with one’s disease- or disability- based needs. Munson’s story inspired readers online and through Facebook to share their support and their own related stories:

Great article, Emily! Working full-time isn’t easy, but it’s worth it.

— Lori Generes, Houston, Texas

Great article — the “Little Johnny” part is my favorite. Too many professionals and some family members, too, sell people with disabilities short. If you live with low expectations all your life, it is the rare person who can succeed in spite of it.

— Christine Dahlberg, Indianapolis, Ind.

Wow, I like this article. I have BMD [Becker muscular dystrophy], and I work full-time. If I was not able to work, I would go crazy. … Keep the good articles coming.

— Wayne Valley, Marengo, Ill.

My fiancé, Andrew, had DMD [Duchenne muscular dystrophy]. Not only did Andrew attend the University of Pennsylvania Wharton School of Business; he also went on to earn his law degree at the University of Miami. So for those of you who are contemplating what comes next … I can only say that you are only limited by your own drive, determination, ambition, goals and dreams.

— Stacy Betman via Facebook

Trend Tracker

Editor’s note: A number of articles from the Winter 2015 issue of Quest have been creating buzz on MDA’s Facebook page. Here are some related stats as of this writing:

  • 94 likes and 15 shares for Tools for Tykes, which looks at power wheelchair options for toddlers and young children.
  • 127 likes and 68 shares for Eat Smart, which provides expert tips for managing healthy diets and muscle disease.
  • 273 likes and 86 shares for A New View, which explores how to overcome anxiety and depression associated with neuromuscular disease.
  • 385 likes and 158 shares for Medication, Meditation and Movement, which tackles how best to combat chronic pain related to a diagnosis.

To find more great stories and join the MDA community conversation, visit

Matters of the heart

Editor’s note: Another popular story on the MDA Facebook page has been ALS blogger Richard McBride’s story on unexpected love, You Never Know, which was originally posted on the MDA/ALS Newsmagazine site in February. As of this writing, Richard’s story has garnered 485 likes. Here’s what some readers are saying:

This brought tears to my eyes ... from both joy and pain (joy for Richard and pain for what it triggers for me). Not only do I have a genetic form of MD, but I also passed it on to both of my kids. I struggle trying to imagine that anyone would want to be part of our chaotic life. This disease can be so isolating ... praying for all of you who struggle with this topic!

— Gina Gualco Kuckler via Facebook

Beautiful. My husband left because I couldn’t keep up with him. I guess he wasn’t worth keeping. I have stayed single for 15 years because I figure no one would take me with my MD. This gives me hope.

— Teri Wyatt DeVore via Facebook

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