Keeping in Touch Summer 2012

by Valerie A. Cwik, M.D. on July 1, 2012 - 3:00pm

QUEST Vol. 19, No. 3

Summer is here, my desert garden is drooping in the heat, and kids are fishing, horseback riding and having the times of their lives at MDA summer camps across the country. But as every school-age child knows, summer days will go whizzing past and in a blink of an eye, Labor Day will be here.

And with Labor Day weekend comes MDA’s annual fundraising telecast, which this year will be a three-hour special, the MDA SHOW of STRENGTH. I’m really looking forward to the new show, which will be fast-paced, focused and multifaceted. (Read more about the show and its new producer, RAC Clark.)

The MDA SHOW of STRENGTH broadcast is a once-a-year phenomenon that’s a lot of fun, but the Association’s real show of strength is put on every day all across the country on behalf of our MDA community.

Valerie A. Cwik, M.D.

You already know about MDA’s missions of help and hope: worldwide research into more than 40 neuromuscular diseases, a national network of clinics, and comprehensive programs of support and information. But did you know about our new symposium series, which brings together small groups of experts from around the world to consider specific issues in therapy development? These focused meetings are aimed at accelerating our research efforts — to learn more, see Research Updates.

And did you know that MDA is seeking your input in order to better represent your needs? As you’ll learn in the MDA Advocacy Report, there are several surveys on mda.org that are gathering information on such vital topics as MDA clinics and barriers to independence.

Every day, MDA is putting all its might behind its programs and services in order to ensure we’re doing everything possible for those on the journey with neuromuscular disease. Our SHOW of STRENGTH is not only this Labor Day weekend — it’s all year-round.

Valerie A. Cwik, M.D.
Interim President and Medical Director

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